I have one less adrenal gland, and four new scars. And they are going to be great scars, I just know it.
Oh, and I am blitzed out of my mind!
Monday, November 30, 2015
Wednesday, November 25, 2015
On the way to the Heights
At the corner of State and 9th, there is a house that always has a hand made sign in the yard. Often they are witty, sometimes poignant, other times informational. (The sign is the only way I knew that HRV won the state boys soccer championship.)
Today's sign was just funny!
Today's sign was just funny!
"Dogs have masters. Cats have servants."How true!
Saturday, November 21, 2015
Road Trip: Day Two
The Astoria Column, in the glow of the morning light.
And just outside Astoria is Ft. Clatsop. For those of you somewhat history challenged, Ft. Clatsop is where Lewis & Clark wintered over.
(Yes Jane, Lewis & Clark were a rock band who drove Route 66 to the west coast, but ran out of money, so had to hole up for a winter in a fort they built.)
And the beloved Gleneden Beach!
Tonight we are in Newport.
Friday, November 20, 2015
Road Trip!!! Road Trip!!!
Karla and I are on the road again. Today's destination: Long Beach, WA.
Visiting a store Karla and I remember from our childhood.
And actually, we are spending the night in Astoria, Oregon.
Thursday, November 19, 2015
Okay, the results are in.
It appears to be nearly unanimous. Everyone from my
oncologist, to a couple of sisters, to some nieces, to a pair of anonymous
people, to a certain orange cat with an amazingly boring power point
presentation and to a co-worker or two: they were all in agreement. Seems it
was just my radiologist and I who were holding out for the easy route.
I guess the easy route is under water at this point.
So, on Monday, November 30th, I am putting all my
eggs in one basket and trusting Dr. Aliabadi to gently take out my adrenal
gland and the accompanying tumor.
Part of what made it a tough decision was the compassion and
devotion that both Dr. Aliabadi and Dr. Seung exhibited. Either they both truly
believe that their treatment is my best option, or they are really good used
car salespeople with doctorates. Neither offered a free turkey if I signed up
before Thanksgiving, so I’m guessing that they truly believe in their science.
And as for me, I wish I had that wild eyed innocence of two
or three years ago. I wish I could look Richard in the eyes and truly believe
it when I said, “We’re gonna beat this.”
But Richard, we aren’t going to beat this. The painting is
on the wall. I get to visit you at St. Mary’s Cemetery and at night when I hug
a pillow real tight. But that isn’t enough, and I don’t know if there is any
more.
Tuesday, November 17, 2015
Tom finally gave his advice.
Okay, it was a 149 slide power point presentation. It took 2
hours and 19 minutes. Tom is meticulous to a fault. There was no possible
option not explored. He needs to work on his presentation, he droned on and on.
Even I started to doze off. Karla was out before the second slide.
It seems he got through to Dr. Sanborn immediately. She
takes calls from my cat before she does from me? She knows the intelligence
structure, but not the power structure. I am the alpha male. Well, unless you
count Max.
Okay, I meant to make this simple, not long and drawn out. I
will not create a flow chart of power in this household. That is relatively
unimportant. As Tom pointed out in slide 47 of the presentation, it is
unflattering to me to do a flow chart, as I am fairly low down on the totem
pole. (Okay, is “totem pole” racist?)
Slide 71: is it 60% or 70%? Depends on the study and the
time span looked at. Both are right, both are wrong. Use 65% if I need a number.
And slide 98: so brutal in its honesty. It doesn’t really
matter if surgery is easier after radiation or if radiation is easier after
surgery. If whatever I chose doesn’t work, there is no back-up except for palliative
care. So I guess this is kind of an important decision.
Slide 114: surgery is no cake walk, but nothing like a year
ago. Radiation, while it can have side effects, it easier that what I had last
summer. I can’t really say as I had any problems last summer from radiation,
other that some burns on my back. (I can’t see my back, I don’t care.)
Slide 136: Max on his knees begging me to do what is best
for him. Although the sentiment is pure Max, the ‘on his knees’ bit is
obviously photo shopped in. He believes in the might of the claw.
Slide 149: you might ask for input. Press “1” if your mantra
is “Pull the plug, pull the plug!!!”, and you think doing nothing is the best
option. Press “2” if you would like to see Mac go through the horrors of major
surgery again. Press “3” if you think he should take the chicken-shit way out
and go for radiation with less misery.
Friday, November 13, 2015
Thursday, November 12, 2015
Lacking the Wisdom of Solomon
I turn to Tom for advice.
I went in today to be mapped for radiation. Have a totally
cool body mold and 7 (yes, count them, 7) totally butch tattoos! I am so
friggin macho I can’t stand it. I am the totally awesome dude your mother
warned you about. Babe magnet: that is me. (And that part is
kind of annoying.)
Anyway, after the mapping extravaganza, Karla and I went to
Powell’s Books and I sold a bunch of Richard’s esoteric book collection. Had to
beat the chicks off with a rolled newspaper, but I made some money. It was pretty
cool in my book.
From there we drove almost directly to Costco. Come on
folks, I haven’t been there in 20 years and what is the difference between 138th
Street and 148th Street, other than one doesn’t get you to Costco? One
number off and somehow you end up in the wilds of Tanganyika!
So, were strolling through Costco, (and yes, I am having to
beat off the enamored women with a stick) when suddenly my phone quacks. (It’s Oregon;
it isn’t that odd for a phone to quack.)
It is Dr. Aliabadi, the surgeon who wants to rip out my
adrenal gland. She says she heard the dark rumor that I had opted for
radiation. She said she respected my decision but wanted to make sure I had all
the correct facts. Surgery was successful 80% of the time. That was the per
cent that Dr. Seung gave. But she said that radiation was only successful 60%
of the time: Dr. Seung said 70%. She also said that she was fairly certain she
could do the procedure laparoscopically, meaning only a couple of weeks off
from life.
Add to that, Dr. Seung said that radiation would start the
week after mapping. Turns out it will start the Monday after Thanksqiving.
Okay, Tom… the question is: are the evolving facts a game
changer, or should I stick with Plan A?
He puts his paw and my forehead and sweetly purrs. “Go to
bed, dear boy and I will tell you what to do in the morning.”
Okay, I toddle off to bed.
Friday, November 6, 2015
The decision has been made
I’m going to go to a chiropractor. They can cure anything.
I jest, but I mean no insult to the chiropractic industry.
It was just a funny.
I have opted for radiation. I go in next Thursday for my
mapping. That’s where they make this amazing mold of my body (trust me it will
be destroyed after I am done) and give me more tattoos. I am going to look so
damn bad with eight tattoos. I will fit in with the biker crowd like there is
no tomorrow.
Great, now the Hood River Chiropractic Society is marching up
my driveway with torches and pitchforks. They really are pissed off at my joke.
Excuse me, I have to save the cats!
Wednesday, November 4, 2015
Tommy head butted me!
Hard.
“If you think for one friggin’ second I’m going to allow you
to do nothing, you are dumber that you friends say!” He then jumped off the desk,
ran into the bedroom and grabbed a quarter in his mouth. He dropped it in front
of me.
“Heads radiation, tails surgery, those are your only choices.”
And the spinal stenosis trauma goes on.
First, for those of you who don’t know about yesterday, a
quick rundown: I have to chose between doing nothing (not a fan favorite with
my sisters), having surgery or radiation. Doing nothing is easy, with no down
time, but the prognosis is grim. Having surgery has the highest success rate in
getting rid of the tumor (80%), but comes with a 2 week to 2 month down time.
Radiation (a special, high dose, directly focused variety) has a 70% success rate,
but has basically no down time. There’s way more to the story, but even I am
bored with it. I ain’t no Solomon. I’ll probably flip a coin to decide. Does
anyone have a three sided coin I can toss?
Today reminded me why I like my doctors in Portland so much.
No one was rude. No one spat on my face. No one called me a whiny little brat.
But they lacked the compassion I have found in Portland and with my primary
care physician here in Hood River.
The doctor thinks I may have some nerve damage. But, he
knows where to start with the medicines and where to do the injections. And he
wants me to have another nerve conductivity test! Damn, those are so much
fun!!!
Monday, November 2, 2015
My new surgeon!
I have an appointment with her at 8:45AM at Providence Portland!
I like her already!
I like her already!
Sunday, November 1, 2015
It's All Saints day
I take a moment to remember Claude and Hazel and Ralph and Trixie. The four greatest Saints of all time!
Just thoughts rumbling through my mind
Odd to ask, but rumbling made me think of Rambler, a car for
my childhood, I wonder if anyone still owns one? Or are they extinct?
Okay, let me type it out loud, one more time. I have stage
four lung cancer that has metastasized to my adrenal gland. I am skinny and weak
and in pain most of the time.
Excuse me, but Max is on my lap now. I need to pet him. It
is required by feline law.
Have I told you guys lately what a sweet cat Max is? Sure,
he curses and says thing you wouldn’t want your kids to hear. And he is a
bully. But his fur is so soft and he purrs so loud and long. Any of you would
be lucky to have such a sweet cat!
Okay, back to the main story line: weak, skinny, pain.
I always thought I would die before I reached 30. I didn’t,
but so many friends died about that age: Joe and Tom and Pete and Bob and Jim
and Harry… all gone in the 80s. AIDS sucks the big one. It wreaked havoc on my
psyche.
But here I am. I have out lived both Wayn and Richard. I
wonder if they have pay phones in hell so I can call them. Maybe they can get a
day pass and come visit me. Okay, odd musing from an agnostic. And no, hearing
I am near death does not draw me closer to any god. Okay, maybe Thor, but only
because he is so hot!
Enough of the gods, I ain’t looking for no god.
Max is back. I need to take another break to pet him. Soft
fur and big purr; amazing cat!
Max has been with me through the last few years. He lost
Ralph and Spike and Trixie and Richard, too. But still he purrs. I don’t think
I could purr right now.
Back to the main story line: weak, skinny, pain.
I have no idea where I am going with this, probably nowhere.
But, I am ready for the next frontier, ready to face a new
reality. Face to face with death. Oregon was slow to allow same sex marriage,
but our Death With Dignity law gives me comfort.
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